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RESOURCES
for Living With Rare Disease
Living with a rare disease can feel isolating and overwhelming. However, the Pfizer Patient Affairs Liaison (PAL) team has put together a variety of resources that can be accessed anytime for more information.
Growth Hormone Deficiency (GHD)
GHD is a rare disorder in which the pituitary gland does not secrete enough growth hormone.
There are three types of GHD:
- Congenital GHD, which is present from birth
- Acquired GHD, which can be caused by trauma, infection, radiation therapy, or brain tumors
- Idiopathic GHD, where no known cause can be identified
Because the pituitary gland doesn’t secrete enough of the hormone that causes growth, patients’ height will be affected, and puberty delayed. Without treatment, GHD can cause growth failure, short height in adulthood, and other health problems.
Resources
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Dream Big For GHD:
DreamBigForGHD.com
Dream Big For GHD has information about growth hormone deficiency, links to patient groups, and other resources. -
Growing Connections:
GrowingConnectionsGHD.com
Growing Connections has helpful information and real stories from families living with GHD. -
Facts About Healthy Growth:
Download now
Read this to better understand how doctors track growth, what “normal” growth is, and when growth failure is an issue. -
The Stim Test:
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A Guide For Parents About Stimulation Testing: This explains what a Stim Test is, and what to prepare for before, during, and after testing. -
An Overview of Growth Hormone Deficiency in Adults:
Download now
Learn more about adult GHD. Read more about what may cause it, how it may make you feel, and things that may help you decide what to do next. -
Mapping Milestones:
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A caregiver’s journey guide to the treatment of growth hormone deficiency. This helps to outline what caregivers may experience when their child is diagnosed with GHD. -
Understanding Growth Disorders:
Download now
An overview to provide better understanding about growth disorders. -
We Have High Expectations Because They Do Too:
Download now
Read for an overview of GHD. This also has information about Pfizer’s experience in GHD care and sources for further reading. -
10 Important Facts About Growth Hormone Deficiency:
Download now
Check out this infographic for a quick read about GHD facts. -
Pediatric Growth Hormone Deficiency (GHD):
Download now
Understanding more about it. -
Advocating For Your Child:
Download now
And staying connected to the Growth Hormone Community.
Spanish language resources
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La Prueba de Estimulación:
Descargar ahora
Una guía para los padres sobre la prueba de estimulación. -
Deficiencia de la hormona del crecimiento (Growth Hormone Deficiency, GHD) pediátricia:
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Entender más sobre el tema.
Patient Advocacy Groups
By clicking these links, you will be redirected to websites that are neither owned nor controlled by Pfizer. Pfizer is not responsible for the content or services of these sites.
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Human Growth Foundation
hgfound.org -
The Magic Foundation
magicfoundation.org -
Prader Willi Syndrome Association USA
pwsausa.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
National Organization for Rare Disorders
rarediseases.org
Patient Affairs Liaison Digital Brochure
An overview of the PAL program. Share this with someone in your life who may want to connect with a PAL!
Insurance Review Webinar Video
This 4-part series provides an overview of health insurance basics. It may be useful to help you understand the options and learn about coverage.
MyHealthcareFinances
MyHealthcareFinances is a tool to help you better understand your finances related to health care and steps you may take to lower your costs.
MyHealthcareFinances está disponible en español: MyHealthcareFinancesEnEspanol
Stay Connected
If you are interested in speaking with a Patient Affairs Liaison (PAL), click or tap below.