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RESOURCES
for Living With Rare Disease
Living with a rare disease can feel isolating and overwhelming. The Pfizer Patient Affairs Liaison (PAL) team has put together resources that can be accessed anytime for more information.
Acromegaly
Acromegaly is a rare disease, usually carried by a benign (non-cancerous) tumor, or growth, on the pituitary gland. The pituitary gland is a tiny organ in the brain. It makes many hormones, including growth hormone (GH). When someone has acromegaly, the tumor on the pituitary gland causes the levels of GH to rise. High GH levels can lead to the production of too much insulin-like growth factor I (IGF-I), which leads to signs and symptoms of acromegaly. Signs and symptoms can include joint pain; headaches; swelling of the hands, feet, and face; increased ring size; fatigue; and sweating.
Resources
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Together With Acromegaly:
togetherwithacromegaly.com
Learn about living with acromegaly and how to better manage symptoms. -
Find Together With Acromegaly on Facebook:
Visit now
Visit Together With Acromegaly’s Facebook page for resources and more. -
AcroTracker™
Tracking your symptoms and injections is an important part of treating your acromegaly. And AcroTracker™ can help. Information is also available about a treatment option.
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Understanding Acromegaly:
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Learn about what acromegaly is, how it is diagnosed, and the signs and symptoms. -
Supporting a Diagnosis of Acromegaly:
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Newly diagnosed? Check out this article for insights that may help. -
Rare Condition Patient Empowerment:
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Learn about what empowerment means and how you can work to achieve it. -
Emotional Wellness With Acromegaly:
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Caring for your emotions can be part of life with acromegaly. This article gives tips that may help you start. -
Acroline: Supporting People With Acromegaly Brochure:
Download now
A guide for friends and family of patients with acromegaly. This may help friends and family understand acromegaly and how to help their loved one. -
Acroline: Acromegaly and Health:
Download now
This explains what acromegaly is, how it impacts health, and how patients can get help. -
Acroline: Looking After Your Well-Being:
Download now
This provides suggestions of ways patients with acromegaly can take charge of their mind and body. -
Acroline: Self-Image Brochure:
Download now
This booklet helps patients cope with potential self-image concerns having to do with acromegaly.
Patient Advocacy Groups
By clicking these links, you will be redirected to websites that are neither owned nor controlled by Pfizer. Pfizer is not responsible for the content or services of these sites.
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Acromegaly Community
acromegalycommunity.org -
Pituitary Network Association
pituitary.org -
Pituitary World News
pituitaryworldnews.org -
Global Genes
globalgenes.org -
Caregiver Action Network
rarecaregivers.org -
National Organization for Rare Disorders
rarediseases.org
Patient Affairs Liaison Digital Brochure
An overview of the PAL program. Share this with someone in your life who may want to connect with a PAL!
Insurance Review Webinar Video
This 4-part series provides an overview of health insurance basics. It may be useful to help you understand the options and learn about coverage.
MyHealthcareFinances
MyHealthcareFinances is a tool to help you better understand your finances related to health care and steps you may take to lower your costs.
MyHealthcareFinances está disponible en español: MyHealthcareFinancesEnEspanol
Stay Connected
If you are interested in speaking with a Patient Affairs Liaison (PAL), click or tap below.